Research Achievements
A comprehensive collection of our academic publications, intellectual property, and collective honors.
Completed Projects
Why Better Brain Tumour Data Matters for Asia Pacific
In this guest piece, James Buckley, Evidence Strategy Lead at the Patient Advocacy Centre of Excellence, IQVIA Global Public Health, highlights why robust brain tumour data and registries are critical across the Asia Pacific region. Writing from an accessible and patient-centred perspective, James outlines how stronger regional evidence foundations are essential for transforming care and improving outcomes for brain tumour patients. He explains that these foundations must include clinical data, patient-reported experiences, molecular testing, and advanced analytics.
Laying the Groundwork for Better Brain Tumour Data in New Zealand
Brain Tumour Support New Zealand has taken a meaningful step toward improving brain tumour outcomes in New Zealand by contributing to the research case for a dedicated national brain tumour registry. Without reliable, comprehensive data on who is affected, how they are treated, and what their outcomes look like, it is difficult to make the evidence-based arguments that drive funding, improve care, and accelerate research.
From India, a New Standard for Brain Tumour Support
Dr. Nitin Garg and the Brain Tumour Support Group Awareness Foundation India (BTSG) have pioneered a model of care that places a trained psychologist at the heart of the brain tumour treatment team from day one. This article explores their five-year journey embedding real-time psychological support into clinical practice in Bhopal, India, and what the results mean for patients, caregivers, and the wider brain tumour community.
Uniting Australia's Brain Tumour Community
Brain Tumour Alliance Australia (BTAA) has spent years turning the collective voice of Australia's brain tumour community into tangible policy change. From building coalitions to shifting government narratives, this is the story of how BTAA secured landmark funding commitments across research, clinical care, and patient support.
Patient Advocacy Makes Its ASNO Debut
For the first time in the history of the Asian Society for Neuro-Oncology (ASNO), patients and advocates took to the stage not as guests, but as equal contributors to the programme. At the 19th annual ASNO meeting held in Singapore in August 2024, a dedicated patient advocacy track was included for the very first time, marking a turning point for brain tumour advocacy across the Asia Pacific region. This article looks at what happened, who was involved, and why it matters.
News and Media Coverage
APBTA Launch
The Asia Pacific Brain Tumour Alliance officially launches, uniting patient organisations across the region in a shared mission to improve outcomes for brain tumour patients and their families.
Message from retired NBA Star, Jason Collins
Jason Collins, retired NBA basketball player fighting GBM, appeals for support for APBTA, an important alliance to build capability and support for patients living with brain cancer in this part of the world.